Mónica Cantón de Celis, director of the CAPPI project, moderates a key round table at the II Congress of Rare Diseases held in Huelva.
Madrid, March 28, 2025.- The importance of paediatric palliative care and its impact on the lives of children with rare diseases and their families. This was the central theme of the round table held yesterday at the II Congress of Rare Diseases organized in Huelva. The Labyrinth Foundation brings together leading experts in the field at the Casa Colón in Huelva on 27 and 28 March to discuss the progress and challenges in the daily care of people with rare diseases or special needs.
The congress, promoted with the aim of improving knowledge and care in rare diseases, was attended by health professionals, researchers and institutional representatives. In this context, Mónica Cantón de Celis, director of the CAPPI project in PORQUEVIVEN Foundation She played a key role as moderator of the Roundtable on Paediatric Palliative Care, guiding a rich dialogue on the importance of an interdisciplinary family-centred approach.
Prominent figures in the debate
The panel was attended by leading professionals in the sector: Noelia González, clinical psychologist at the Niño Jesús University Children's Hospital; Alejandro González, social worker; María José Peláez, pediatrician at the Regional Hospital of Malaga; and Marta Sánchez, nurse at the Reina Sofia Hospital . During the debate, the main challenges and advances in the care of children with chronic or advanced diseases were addressed, highlighting the need for comprehensive care that includes psychological, social and emotional support.
"It is essential to ensure that each family receives the necessary support to face such a complex situation, ensuring their well-being," he stressed Mónica Cantón de Celis during the meeting.
The II Congress of Rare Diseases It reaffirms its role as a key space for scientific updating and the exchange of experiences between professionals and families. In a context where the need for paediatric palliative care continues to grow, meetings such as this are essential to improve care and promote public policies that guarantee adequate resources and support.
Contact: Cristina del Amo, head of communication for the PORQUEVIVEN Foundation cdelamo@porqueviven.org
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