Frequently asked questions

Answer any questions you may have

In the Foundation because Live we work to give visibility to Pediatric Palliative Care (CPP) and provide comprehensive care to its patients. For this reason, we invite you to discover here the keys to our work and the pioneering project we are developing, the Comprehensive Paediatric Palliative Care Centre (CAPPI) that will open its doors in Madrid in 2026.

What is Pediatric Palliative Care (CPP)?

These are care with a focus on comprehensive care of physical, psychological, emotional, social and spiritual needs of children with incurable diseases and their families. The idea is fill their LIVES with LIFE .

What are the differences between Paediatric Palliative Care and Palliative Care for adults?

The Pediatric Palliative Care they are longer care processes, many times, years. It must be taken into account that the child is in continuous physical, psychological and emotional development.

How many children need Paediatric Palliative Care in Spain?

In Spain 60,000 families. Only 15% are attended. In Madrid approx. 3,500, of which approx. 30% are attended.

What is the scope of action of the Foundation because Live ?

Families are currently served in the Autonomous Community of Madrid and Aragon. And we support the dissemination and training of volunteers and public and private entities throughout Spain.

What services does the Foundation because Live ?

Those necessary to ensure that the home can be the place of care , providing families with psychological, social and spiritual care, therapies, respite time for caregivers, financial aid, orthoprosthetic material, etc.

What relationship does the Foundation because Live with public services?

The Foundation because Live complements the services provided by public health in Madrid and Aragon to ensure that the home is the best place for care.

Do the children served by the Foundation because Live are they cared for by public health?

Yes. Always. Access to families served by the Foundation because Live It is carried out through the teams that attend to these families in the public health system.

¿The Foundation because Live is integrated into the public Paediatric Palliative Care teams, such as the UAIPP of the Niño Jesús Hospital in Madrid?

No. The professionals of Foundation because Live they coordinate with the Paediatric Palliative Care team of the Niño Jesús Hospital to optimise the use of their resources and care for families.

¿The Foundation because Live does it only serve children from the Niño Jesús Hospital in Madrid or Miguel Servet in Aragon?

No. Any patient who is receiving Pediatric Palliative Care can be seen by Foundation because Live . Sometimes they go to the Foundation families who have lost a child unexpectedly and want support for grief. We always assess their needs to attend to them or direct them to another type of resource that is more appropriate.

Are public health resources insufficient?

We do not know if they are insufficient But the needs of families are endless .In Madrid, excellent care is provided with a team with 24/7 response capacity. What it provides Foundation because Live are additional services that are not included in the usual portfolio of services of a public Paediatric Palliative Care unit.

What is CAPPI?

It is a social and health resource that complements health services with aspects that ordinary or home hospitalisation does not contemplate. The CAPPI is the first comprehensive paediatric palliative care centre to be built in Spain. It was created in Madrid because here, public health guarantees care for children with palliative needs and their families. CAPPI will complement this care with additional resources for respite and socialization.

What services will be provided at CAPPI?

Rooms to accommodate children for the respite of caregivers, Day Center, Integration Classroom, Therapy Area, Training Center for professionals and apartments for end of life.

What is the capacity of CAPPI to care for children in Palliative Care?

The Comprehensive Pediatric Palliative Care Center It is designed to accommodate 30 children in family respite, although, if necessary, it will have a capacity to expand to 60 patients.

It will also have 24 beds that will be distributed in its Day Center besides 4 apartments designed for the End-of-life care .

When will CAPPI start operating to offer Paediatric Palliative Care in Madrid?

The CAPPI will start operating in Madrid in mid-2026 , complementing from then on with public health to offer comprehensive care services in Paediatric Palliative Care.

How can I collaborate with the Foundation because Live in Pediatric Palliative Care?

You can support the Foundation because Live through volunteering, making donations or helping to disseminate their work . Please note that Every contribution helps to improve the lives of children in Paediatric Palliative Care and to assist their families.

What are respites?

These are periods of Respite Care Offered to Families Caring for Children with Palliative Care Needs . These respite provides primary caregivers with an opportunity to rest, take care of your own well-being and regain energy , while ensuring that the child continues to receive Quality Care . Family respite may include temporary hospital stays or skilled residences, home care services, or recreational and therapeutic activities.

What benefits do family respite programs offer?

Respite programs offer families an opportunity to reduce stress and emotional fatigue. They help caregivers avoid emotional claudication, allowing them to maintain their well-being and continue to provide quality care for the child in the long term, ensuring a better balance in your daily life.

Help us change lives!

In because Live , we work to improve the lives of children who cannot be cured and that of their families.

But we can't do it alone. Your help is key to more children with Incurable diseases receive the attention they deserve. Donate, share or get involved and be part of the change.

Together, we can bring life to your life.