Pediatric Palliative Care

What is Pediatric Palliative Care?

The Pediatric Palliative Care are specialized care for children with chronic or incurable diseases that seriously affect their lives. More than a medical approach, they represent a Comprehensive accompaniment which encompasses the child's body, mind and spirit, providing support to their families as well.

The objective is to relieve pain, symptoms, and stress of the disease, guaranteeing respect for the Dignity and autonomy of the child. Through continuous and individualized care, we seek to improve their lives and maintain the Family balance . This includes psychological, social and spiritual support , as well as specific resources for siblings and rest spaces for primary caregivers.

Find out more about the Pediatric Palliative Care and its impact on the lives of children and their families through the PEDOPAL .

"You matter for who you are, you matter until the last moment of your life, and we will do everything in our power not only to ensure that you die a peaceful death, but also so that, as long as you live, you do so with dignity."

Cicely Saunders

60.000

families in Spain need paediatric palliative care.

15%

of these families receive adequate comprehensive care.

3

Complete teams with 24/7 care and home hospitalization.

Key points

Medical advances and new challenges

The reduction of the infant mortality has allowed more children and adolescents to live with Incurable diseases , generating new needs. These situations require Specialized care to ensure well-being for both patients and their families, during illness and beyond.

Well-being and dignity

The Pediatric Palliative Care respond to the needs of children with Incurable diseases , guaranteeing its well-being and dignity . Their approach does not seek to prolong or shorten life, but to provide comprehensive care that alleviates suffering and supports their families.

From diagnosis

The Pediatric Palliative Care begin with the diagnosis of a incurable disease , without the need for a short-term life prognosis to receive them.

Comprehensive care

Meets the needs physical, emotional, social, and spiritual of children and their families. An interdisciplinary team ensures continuous assistance, prioritizing home care whenever possible.

Grief accompaniment

Support for the family continues after the child's death, providing accompaniment in the grieving process.

Madrid Manifesto 2020

A commitment to life and well-being. The Madrid 2020 Manifesto promotes Paediatric Palliative Care as an essential right.

Challenges and Opportunities in Pediatric Palliative Care

The main challenges to be addressed in the coming years include:

Social Awareness

It is essential to raise awareness in society about the importance of paediatric palliative care, promoting an open conversation that removes taboos around the death and dying process of children.

Regulatory development

Promote legislation that guarantees equitable access to this care throughout the country.

Specialized training

Expand the training of health professionals in this area to ensure quality care adapted to the specific needs of children and their families.

Expanding Home Care

To encourage families to receive support in their environment without depending exclusively on the hospital environment.

Equity in Access

Removing geographical barriers and ensuring an equitable distribution of resources allows all families who need it to access this care, regardless of their location.

Paediatric Palliative Care as a Fundamental Right

Paediatric palliative care should be understood as a fundamental right of every child and their family. Access to them must be guaranteed by the health systems and not depend on the availability of resources or the autonomous community in which the family resides. The World Health Organization (WHO) recognizes palliative care as an essential component of universal health coverage and its implementation should be a priority within public health policies.

Help us change lives!

In because Live , we work to improve the lives of children who cannot be cured and that of their families.

But we can't do it alone. Your help is key to more children with Incurable diseases receive the attention they deserve. Donate, share or get involved and be part of the change.

Together, we can bring life to your life.