The Porque Viven Foundation has joined the signing of a document that calls for the Commitment to improve care for people at the end of life.
The document promoted by the Spanish Association Against Cancer (AECC) and the Spanish Society of Palliative Care (SECPAL) is as follows:
Commitment to improving end-of-life care
Receiving end-of-life care is an inalienable right of the individual.
Although Spain is among the countries with the greatest development of care resources
palliatives, we must continue to improve the care that our National System of
Health offers to people who are facing this situation. It is necessary to achieve
that reach 100% of the population that needs them, both adults and children and
adolescents, without any type of discrimination.
80% of people would prefer to receive this care in their own home, so
that we must provide the necessary resources to ensure that this is the case,
whenever possible due to the conditions of the person and the family.
Both the patient and their family are the center of this care and must have the
assurance that their needs will be met, both physical and pain control
and symptoms), such as emotional, social, or spiritual ones.
End-of-life care is a process of comprehensive, individualized and continuous care.
The signatory entities sign this declaration on the occasion of World Workers' Day.
Palliative Care and undertake, within the framework of their competences, to promote actions aimed at:
- To make the population aware of their right to receive quality care at the end of life.
- Respect the patient's preferences if they wish to remain at home,
provided that the conditions of the sick person and their family environment make it difficult for them to do so.
Allow. - To facilitate multi- and interdisciplinary work, as well as the adequate coordination of professionals who provide relief and care in all dimensions of the quality of life of the patient and their family (physical, emotional, social and spiritual).
- To facilitate the training of professionals in the social and health field in the care of individuals and families in this situation.
- Identify and promote good practices in end-of-life care.
- Facilitate the participation of patients and caregivers in the care process.
- Provide the primary caregiver with the necessary support resources to improve both the quality of life of their sick family member and their own.
- To promote social solidarity in the accompaniment of people at the end of life through volunteering trained for this purpose.
- Ensure the availability of bereavement care, so as to promote continuity in the care of the family unit.
Madrid, October 2015. World Palliative Care Day.
Promoting entities
Spanish Association Against Cancer (AECC)
Spanish Society of Palliative Care (SECPAL)
Entities committed in alphabetical order (as of 7 October 2015)
Association of People Affected by Ovarian Cancer (ASACO)
Madrid Bioethics Association (ABIMAD)
Community Nursing Association (AEC)
Association of Palliative Care Nursing (AECPAL)
Spanish Association of Surgeons (AEC)
Spanish Association Against Cancer (AECC)
Spanish Association of Amyotrophic Lateral Sclerosis (ADELA)
Spanish Association of Health Informants (ANIS)
Spanish Association of Pediatrics (AEP)
Spanish Association of Clinical Psychology and Psychopathology (AEPCP)
Chair of Palliative Care at the University of Vic
WHO Collaborating Centre in Palliative Care - Catalan Institute of Oncology
Center for the Humanization of Health (Camillian Religious)
Official College of Psychologists of Madrid
Spanish Committee of Representatives of People with Disabilities (CERMI)
Spanish Confederation of Associations of Relatives of People with Alzheimer's and others
Dementias (CEAFA)
Ministry of Health of the Regional Government of Andalusia
Ministry of Health of Aragon
Ministry of Health of La Rioja
Department of Universal Health and Public Health of the Valencian Community
Ministry of Health of Castilla y León
State Council of Medical Students (CEEM)
General Council of Official Colleges of Physicians of Spain
Regional Coordination of Palliative Care of the Community of Madrid
Cancer Strategy of the Balearic Islands
Europacolon Spain
Federation of Community Nursing and Primary Care Associations (FAECAP)
Multiple Sclerosis Federation
Spanish Federation of Breast Cancer (FECMA)
Spanish Federation of Rare Diseases (FEDER)
Spanish Federation of Parents of Children with Cancer (FEPNC)
National Federation of Associations for the Fight Against Kidney Diseases (ALCER)
Spanish Patient Forum (FEP)
CEPAIM Foundation
CUDECA Foundation
Juan Ciudad Foundation (Brothers of St. John of God)
New Health Foundation
Because They Live Foundation
Rioja Health Foundation
Víanorte-Laguna Foundation
Carlos III Health Institute (ISCIII)
Ministry of Health, Social Services and Equality (MSSSI) – Sub-Directorate General for Quality and Cohesion
Qualy Palliative Care Observatory
Organization of Consumers and Users (OCU)
Oncology Master Plan, Department of Health, Government of Catalonia
Platform of Social Action NGOs (POAS)
Patient Organizations Platform
Spanish Volunteering Platform (PVE)
Canary Islands Health Service
Galician Health Service
Spanish Society of Pathological Anatomy (SEAP)
Spanish Society of Anesthesiology, Resuscitation and Pain Therapeutics (SEDAR)
Spanish Society of Palliative Care (SECPAL)
Spanish Society of Geriatric and Gerontological Nursing (SEEGG)
Spanish Pain Society (SED)
Spanish Society of Oncology Nursing (SEEO)
Spanish Society of Epidemiology (SEE)
Spanish Society of Geriatrics and Gerontology (SEGG)
Spanish Society of Hematology and Hemotherapy (SEHH)
Spanish Society of Pediatric Hematology and Oncology (SEHOP)
Spanish Society of Family and Community Medicine (semFYC)
Spanish Society of Internal Medicine (SEMI)
Spanish Society of Primary Care Physicians (SEMERGEN)
Spanish Society of General and Family Physicians (SEMG)
Spanish Society of Nephrology (SEN)
Spanish Society of Medical Oncology (SEOM)
Spanish Society of Radiation Oncology (SEOR)
Spanish Society of Psycho-Oncology (SEPO)
Spanish Society of Health Emergencies and Emergencies (SEMES)
Democratic Union of Pensioners (UDP)
